ME/cfs Scandal Continues
Below is the email that I have received from Joe Marsh of the
Kent/Sussex ME Group and AfME affiliate. I have also had an email in
from Colin Barton, but I think that posting this one on its own will
do.

This email constitutes abuse. It casts aspersions on my care of my
sick son amongst its other comments. It is vicious.

A copy of this email has now gone to The Times, The Sunday Times, The
Telegraph, The Big Issue and Disability Now.

This is what AfME affiliates do to people who raise
serious,legitimate and legal concerns over the workings of these
supposedly ME/CFS patient focussed organisations.

They try to use scare tactics. They try to frighten. And they do it
late at night. This is how they behave.

Jane

London UK

-----Original Message-----
From: Joe Marsh [mailto:joe.sussexme@btopenworld.com]
Sent: 08 February 2004 00:21
To: janebryant22@yahoo.co.uk
Cc: 'Colin Barton'
Subject: Useless information


Mrs. Bryant,

As usual you never cease to amaze me. For someone who claims to be a
journalist I would have thought that there was one element you got
right..... the truth!!

But yet again we see you criticise, taunt and immaturely abuse people
on your site. From Dr Shepherd to AYME, you seem relentless in your
quest to upset as many people as possible with misinformation and
false statements. Well now it is time for you to learn a lesson.... It
is called THE LAW.

And very soon you are going to find out what happens to people who
abuse it. People who lie, and twist information and make things up!!
One day you, I hope, you will see that all these people you "slag"
off are there solely to help your son. I hope one day he recovers
from this illness.... Although it is well known that support from
family helps. And one cant help but wonder how much time you spend
with him. After all you seem to spend all your time on the computer
slagging everyone off that is trying to help him. No doubt you will
put this on your site and have a "bitch" at it like you do all other
information you steal from IMEGA-e but for once perhaps you can face
your peers and answer what exactly you do.... Why you think you are a
doctor of M.E. and why you think you know so much about this illness
that you can criticise all others who try to help!! It would be
interesting to see what you actually do that is positive and helps
people with M.E. because as far as I can tell all you seem to do is
look for the negative and then abuse it as much as possible. Perhaps
you should be looking at positive information and recoveries that
people have made and therefore have a varied report on your site.
Sometimes I wonder why sites like yours exist. All you seem to do is
try and bring down those who are there to help! Do you think we do
our jobs for fun?? I look forward with interest to your reply to
this message.

Joe

Joe Marsh | Development Officer | Sussex & Kent ME/CFS Society

www.measussex.org.uk
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I wonder if the members of this "society" are aware of the above e-mail